Sunday, July 18, 2010

My Reset Button

At the end of my cancer treatments, the nurses all said something like: "Now you need to go on a nice vacation." I remember one nurse saying specifically: "Now you need to find a rock on a beach somewhere and sit on it." I didn't take their advice very seriously, besides, my family had been doing without me for almost a year...like I was going to abandon them for one more day.

So, with both feet eager and ready, I jumped neck deep back into life as rapidly as possible. But something wasn't right. As time went on, and emotional struggles multiplied, I realized it was going to take something more than both feet to get my life back. But I didn't know what.

I pushed onward, only to find it more and more difficult to cope with the simplest things. After a while I noticed that everytime I learned of the loss of a friend or even a stranger, to cancer, things became progressively worse. I got to the point that I would become angry if I went to my survivor support group and found out that someone's remission had ended and they were back in the fight. It felt like for every person that lost their life, I had to be even more perfect, more effective and more capable to earn my right as survivor. It was in this state of white-knuckling survival mode, that a vacation we had planned and cancelled and planned and cancelled again, actually not only survived the planning stage, but magically came to fruition.

Our vacation was set way back in the mountains, just north of Sundance. BYU runs a family camp called Aspen Grove that we've gone to before and that I've always loved, but I never knew it would save my life. But after only two days, I felt the old me finally returning. I used to look at pictures of me before cancer, and wonder: "who's that? she looks so familiar". But now, even though I definitely don't look like the girl in the pictures, I can claim that girl as myself.

Ever try that mental exercise where you imagine yourself in a beautiful, peaceful setting, like a beach? I did that a lot when treatments got hard, and the place I imagined was always Aspen Grove. Maybe that has something to do with why being there had such an instant, palpable impact on my well-being. Or maybe humans have a reset button, like a lot of electronic devices. If that's the case, I know where mine is...ten miles up Provo Canyon.

Friday, June 18, 2010

Call me J.P.

Last week I walked in to each one of my doctors appointments, pretty sure that I was wearing a giant "hypochondriac" sign on my back. But as long as my insurance company didn't mind, I was ok with that. All I wanted was a clean bill of health, some assurance that the little aches, pains and coughs I had been dealing with were the kind you could safely ignore. But when I called myself a hypochondriac in front of my doctor he looked up and said "You're not a hypochondriac...we call people who have been through what you've been through "justifiable paranoids". I liked that a lot. You can call me J.P.

I had a blood test called a D-dimer. It was to check for a blood clot in my lungs, that could possibly explain my coughing. The D-dimer tested positive, which meant I had to go directly to the hospital and have a CT Scan. I'm not afraid of tests like that anymore, but I totally hated the feeling of driving to the hospital at that moment instead of driving to my house to make dinner for my kids. I was supposed to turn right at the intersection, not left. Didn't the D-dimer know I already had plans for the evening?

Long (painful) story short, CT Scan was clean. No clot. Still coughing? Yes, but I guess I have to live with that. When it gets really bad, I go online and diagnose myself. Doctors must hate the internet for that reason. All these little know-it-alls sitting in their waiting rooms, writing their own obituaries. At any rate, last week I decided it was Radiation Pneumonitis. This week I'm pretty sure it's Pulmonary Fibrosis.
J.P. signing out.

Tuesday, June 1, 2010

You're Rubber, I'm Glue

Several years ago (ok...at least a decade), one of the girls in my neighborhood playgroup showed up one morning distraught over the fact that that morning she had turned her back on her baby, just for a second, while he was on the changing table. The exhuberant little infant gave on good kick against the wall where his feet were and zoom! Just like a little torpedo, his big baby-sized head was on the fast track for the floor, with the rest of him not far behind. Smuggly, I half sympathized with her and half patted myself on the back for not being as stupid as she was. It couldn't have been two weeks later that I heard a large thump coming from my bedroom, followed by the familiar startled screams of a baby becoming aquainted with the law of gravity. (She was sound asleep when I left her on that bed, I swear!!!)

It was then that I became aware of a new law myself, the law of "if you think someone else is lame, watch out...your own lameness is just around the corner". This law or lesson or whatever you call it, has become far too familiar to me over the years. Best I can figure is, you're rubber, I'm glue...what I say bounces off you and sticks to me.

Interesting confession, you say. But wait, it gets better. The reason I tell you this is because I've lived most of my adult life without the ability to understand people who run to the doctor for every little hiccough. Who belch and say "oh no... I must have the stomache flu". My motto has always pretty much been; "I don't wanna be sick, therefore, I'm not." Don't scoff. It's worked. I've been sick (aside from tumor related illness) twice in the past seven years. The rest of my family, twice every year.

So what happens when you walk around with disdain for the non-believers? You got it! That old rubber-glue law kicks into action and the next thing you know, you're recovering from cancer and turning into a hypochondriac all at the same time. I've been trying to ignore little discomforts and quirky body irritations now for at least six months and it finally got to me last week. I broke down. I made at least 10 calls to my doctors and four appointments. It's like I couldn't get enough. I'm going to be picked over with a fine-toothed comb this week and they won't find anything wrong with me. I better find out what hyperchondriacs do after that. Hopefully it involves going for D A Y S if not weeks without thinking about my stinkin' health and my poor picked-on body!

Special "O" Info

If you wanna be part of the Special Olympics sometime, you can email volunteer@sout.org or visit www.sout.org.

They have events like bowling or swimming throughout the year in cities near you, with the big two day Olympics on the last Friday and Saturday of May every year at BYU.

Monday, May 31, 2010

Crave the Rave

As often as time and opportunity will allow, I like to take the kids to volunteer at the Special Olympics. The seeds of this tradition were planted long before I had children or was even married. I went with the singles group from my church and had such a marvelous time that five years ago when I decided I was long overdue to go back and help I thought for sure it would be hard to get in and they would be turning volunteers away. Not so. They've always needed us. And in a beautifully, almost poetic way, we've always needed them.

Sometimes when we go, we are assigned to act sort of like officials. We make sure they bowl when it's their turn, or stay inside the boundaries of the bicycle course, etc. always cheering them on along the way. But sometimes, cheering is the only thing we are assigned to do. This year the committee coined the phrase "Fans in the Stands" to describe volunteers assigned to cheering. Maybe some volunteers don't come back because they don't feel needed when they are placed as a cheerleader or a fan in the stand. But this year, the reality of just how much these athletes respond to the encouragement of cheering, became evident to me.

Three of us were sitting by the shot-put event cheering on the contenders when a large group of teenagers came to cheer as well. With their added volume and enthusiasm, you would think you were at an NBA game that was in overtime. The athletes perked up instantly. The shot was put significantly further than ever before. They smiled each time they heard their names being called from the crowd.
It was exciting.

As the event went on and the different divisions came to compete, the teenagers became distracted once in a while and would entirely miss a competitor here or there for no appearant reason other than a text message or an important conversation about something that happened the night before. Innocent and expected from a group in that demographic, but oh how my heart ached for those that didn't hear a crowd cheering for them.

I haven't stopped thinking about how significant it is to be encouraged, even cheered on. So simple, yet so significant. But we live in a world that is severely deficient in applause and approval. Unless of course, you're heads above the rest; bigger, sexier, richer, if you have -er at the end of any of your attributes, you know what it feels like to be cheered and appreciated. You also know what if feels like once the cheering fades. But what about those of us who are merely capable of only doing our best, like the Special Olympians, like the majority of the human population? Doing your best has become so under-appreciated that many people have lost the motivation to do even that.

But where does the fault lie? In the ravers or in the cravers? I believe it's the latter. If we focus on the perfect gifts that God has given us, that dwell inside of us, that bless those around us when we freely share them for the sake of beauty and not the sake of praise, we have serenity and a sense of fulfillment. We can see our perfect place in the universe and in the lives of those around us while being imperfect. We can hear God cheering, we can see five loaves and two fishes go a long way.

Three days ago I was assigned to cheer someone on. It was my job. But in reality, their willingness to take what God had given them and do their best was probably the most cheer-worthy thing I had seen all week, assignment or not.

Tuesday, April 20, 2010

Relax...I won't quit

I need your prayers. Or...maybe I need self-discipline. It's possible I just need to grow up. And I probably really need some other things too...but I think I'll just ask, ever so humbly, for your prayers.

Dilemma as it stands: I just realized I have a crazy bad habit. The first three times I "practiced" this habit, I was completely oblivious that there was any kind of trend to it. But fortunately, I'm only somewhat thick, and I realized yesterday, that I have a problem.

Hello. My name is Rosemary and I am a quitter. Can't there be another word for it? I hate "quitter", it sounds so lame and even despicable to some degree. But what else do you call someone who gets a job in the winter, loves it, but then wants to quit the moment signs of summertime start to appear? My last three jobs have all ended exactly that way.

I have wonderful reasons, other than summer, when I quit. Once I quit due to nepotism, an other time it was sexual harassment, and then there was "religious reasons". See...they're good reasons, aren't they?

The answer is yes, those are good reasons, but...I've run out of 'em. I have no reason to quit this year, hence my moment of self-discovery: I just wanna play all summer! Thanks to the public school system, that was firmly engrained into my psyche for twelve of my most impressionable years. Work all winter, play all summer. How can I not want to quit?! (Thank you...I feel your sympathy and compassion already)

Dad, if you're reading this, relax...I'm not going to quit. First of all, this was the hardest job ever to get, the economy IS a little scary to say the least. Second, I don't think I could go to another job interview and keep a straight face knowing what I know about myself now. I'd be laughing through every question. Potential Boss: "Why should we hire you?" Me: "Replacing me is half the fun?"

So now I've just limited my readership by about eight people. Eight people at my place of employment that can never EVER read this blog. (Shhhhhhh.....be very, very, quiet.)

But if they did read this...hmmmmmm...I wouldn't have to quit.....

Ok...I'm so kidding. C'mon...I just said this job was hard to get. And I do currently have Friday's off. So really...this is the best job ever. Right?! No quitting. And no getting fired on purpose. (Thank you...I am a good girl, aren't I?)

(But just for the record, that moving my desk downstairs...from a private office to a S H A R E D office??? That was lame people...so lame.)

Saturday, February 6, 2010

Driving 60

Have you ever tried driving below the speed limit...on purpose? I mean, while other cars are zooming past you? Not menacingly slow, just something like 5 mph under the limit? If you're a lead-foot like me, this will be a new experience for you and somewhat of a challenge.

A few weeks ago I found myself driving to the mall very late at night, to pick up my son and his friends who had all just gotten out of the late show. I had been going, going, going all day and had long since run out of stamina. I was so completely wiped out that by the time I was backing out of the driveway for this last errand...even my van felt tired.

Usually I take to I-15 at a nice 7-10 miles over the speed limit and I'm usually in good company, but that night 60 was all I could muster. I was officially out of the race. Car after car passed by, leaving me in the dust. As I plodded along in the slow lane I began to realize that I had left the world I was used to living in and had entered a whole new existence. I was driving at the speed of contemplation. I waxed philosophical, like some sort of guru with a key fob. Everything became a metaphor as my inner beatnik emerged.

Driving slow started to mean that where I had been was OK and that I didn't have to run away from the past. It started to mean that where I was going was my decision, but how I got there was largely up to forces beyond my control, a.k.a."Life is what happens while you're making other plans". Sixty miles an hour meant no competition, no vying for preeminence. No enemies. My new compliance with the law squelched my old fear of it. And for once in my life, I wasn't secretly employing every bad driving practice that my husband openly loathed, while wondering how I'd explain myself if I were to get caught. (is there an emoticon for "sheepish confession"?)

Later I realized that if I wanted to maintain this slow-driver status/state of mind, I would finally have to own up to the fact that sometimes I'm a little overbooked and a lot of late...which is something I hate. I hate late. Speeding is my form of denial, a desperate attempt to escape from consequences and frankly, buy more time. For me, speeding was like buying on credit. Trying to get somewhere on something that I just didn't have, all for the sake of appearances. In the future, driving slow would take more than just being tired, it would take planning, downsizing my schedule a bit, self discipline and most gruelling of all...self-honesty. Basically, all the things that any decent key-fobbed guru would need.

So the question is...can I do it? I'm not sure, but I do know this: If you ever have more miles to go than money for therapy, don't underestimate the power of a good slow-down. And my guess is...slow-downs work in kitchens, bedrooms and backyards as well. No steering wheel needed.

Thursday, January 28, 2010

P.S.

I have felt the warmth of your company, and the grace of your kind thoughts throughout this blog. Thank you for your comments and friendship. They will never be forgotten.

Wednesday, January 27, 2010

Go On

The next 500 words you read in this blog, give or take a few, will mark the end of my career as a cancer blogger. All in all, that’s a really good thing because it means I have run out of things to say about life with cancer. It has stopped being a disruption in my life.

Some people ask me if I am in remission and, what the heck…I say yes. My doctors haven’t exactly used those words. But that is mainly because it has sort of fallen out of fashion to say the word remission in the world of oncology. It’s too gloomy. It suggests an eventual return, does it not? So you might hear the acronym NED instead, which means No Evidence of Disease. You say tomato; I say… as long as I don’t have to have chemo, I’m happy!

I am aware that PTSD (Post Traumatic Stress Disorder) has been found in some cancer survivors. That probably explains why I struggle with guilt when I hear about other people who have actually lost their life to the disease. But fortunately, that’s the extent of the emotional side effects that I have been left to deal with.

Looking back on my initial diagnosis and the hours that followed, I’m struck by how certain I was that I was going to die, how desperately I did not want to leave my children, and how overwhelmed I was at the thought of someone having to sort through that pile of papers on my desk that never seemed to go away, after I died. The first two thoughts demanded every tear my tear ducts could produce, the last one…well that was just weird, but so very very me.

Now I find myself consumed in a crossword or sudoku puzzle every chance I get in a desperate attempt to eradicate “chemo brain” or what some call the “chemo fog”. I actually drove my car to the Safety/IM station for an inspection not too long ago, just to realize as I pulled into the bay that the car that needed the service was still in my garage at home and that I had driven the wrong car down. But my favorite story comes from a young musician/chemo patient in New York who got a flat tire late one very, very cold winter’s night. He got out of the car and managed to jack up his car and put the spare tire on without freezing his fingers off or getting mugged, just to realize as he was one foot back into the vehicle that he had changed a perfectly good tire and the flat one was still sitting on the wheel!

So, everything is going to be all right. I won’t blame myself for the tumor, but I will eat less sugar and more vegetables. I’ll take a hundred bad hair days over a “no-hair” day, any day and I will find a six-letter word for "laugh" before the night is through. My blog will go on...but have very little to do with cancer, if anything at all. Cheers.

Wednesday, January 13, 2010

Plastic Surgery

Let’s face it; there are just some parts of your body you don’t want to discuss with anyone, not even your doctor. We get embarrassed. However, cancer is no respecter of organs. Therefore we find that as age marches on, we must submit to awkward medical procedures and conversations once in a while, in order to prolong our stay as mortals.

Let’s all be mature, shall we? Well, that’s easier said than done for me. I am 40 years old yet I still crack up like a fifth grader when I hear the word “fart”. Just typing it made me laugh. So perhaps that explains why I’ve found it difficult to have breast cancer. I feel awkward talking about breasts, especially my own.

So imagine, immature little me having to delve head first into the world of plastic surgery. Imagine me at my first appointment with my plastic surgeon as he explained the reconstruction process. I felt like I was investigating some sort of cult, incredulous to learn what they were putting in the punch that everyone was drinking.

No way was I going to write about this in my blog. Too weird and way too personal. But then I kept seeing this beautiful young girl in my head, sitting at her computer, contemplating cosmetic surgery. Could anyone out there be more starved for the truth than today’s youth? Could anyone be more vulnerable to our cult of beauty?

So it is with “her” in mind that I swallow my pride and put my giggles away. For you, my little sister, I share my honest thoughts: Yes, your dress may fit a little better, but just as the novelty of buying that dress wore off, so will the novelty of your new profile in it. You’ll be just as happy or miserable as you were as an A cup now that you’re a D. I once lived in a Parade of Homes home, now I live in a duplex. My surroundings have changed, but in the morning, I still wake up with the same me that I used to put to bed at night in my old mansion. Happiness and success comes from the soul, not the shrink-wrap.

As fabulous a job as plastic surgeons have done over the years to improve their ability to mimic nature, there’s still no fooling anyone. Not anyone. Fake is fake. If you can live with it, fine. Many do. I do. But if you had a choice, would you rip the trees out of your yard and replace them with silk ones from the super mart? Silk plants are great. I love ‘em. But silk plants don’t give me oxygen. They don’t grow. They don’t need me.
They don’t interact with their environment, overcome adversity, follow the sun, or do anything dynamic and memorable like real foliage does. Fake is fake.

Finally, let me just say…it hurts. It really, really hurts. Each of us gets to choose every day how much suffering we will introduce to the world. The less suffering we inflict upon each other, the better. The less suffering we inflict upon ourselves, the best.

So little sister, this is my opinion. Not my judgment. I condemn no one for choices that come from a heart that has never beat in my chest. To the rest of my readers, I hope I didn’t offend anyone and I hope you never let “body embarrassment” stop you from doing the right thing, from having a colonoscopy to saying excuse me. (pardon me while I giggle)